Being Prepared

Posted on 29. Jul, 2007 by in Emergencies, Glycogen Storage Disease, Glycogen Storage Disease Type 1A, GSD Resources

Just another small example on how the unexpected can happen and give you a sudden spook.

A few nights ago we were getting the kids bathed and ready for bed. The process started out normal enough with the typical herding of kids and trying to keep our 18 month out of anything he can think of including the toilet. My hands were pretty full so I had asked my oldest son to take off the pad around his g-button… thud. Not only did the pad come off but the g-button did as well. My son and I shared a slow-motion moment as we looked at the funny looking device that just fell out of his stomach and lay like a slain beast on the floor.

Of course we both quickly realized that this was a bad thing and commenced the procedure of panic and calling for mom to help. Mom had to cut off the conversation that she was having with one of her friends that stopped by and was soon running up the stairs to see what we were screaming about. Luckily she had prepared and had a back up Nutriport g-button close by, which I was able to promptly replace.
Moral of the story… keep extra supplies on hand! Extra g-buttons, lubricant jelly and adrenaline are a must.

2 Responses to “Being Prepared”

  1. Jillian

    31. Jul, 2007

    I’m glad you can look at that experience with a sense of humor… now. :)

  2. JOSE LUIS CEIDE

    02. Oct, 2007

    Hello,
    I am the father of Rubén(17 years) and Antía (9 years) with GSD 1a, of Spain.

    The control of two children with GSD seemed very difficult to me, but, seeing its case, the life seems to me wonderful.

    Much luck in its fight.

    Jose Luis Ceide Arias

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