Glycogen Storage Disease Get-Together in the West

Posted on 12. Jul, 2007 by Jillian in Education, Glycogen Storage Disease, Glycogen Storage Disease Dogs, Glycogen Storage Disease Type 1A

At our last visit to Florida and Dr. Weinstein, he mentioned we should try to find a way for our boys to meet others affected by Glycogen Storage Disease. Since most GSD kids in the U.S. seem to be in the east, it’s no wonder that so are most of the conferences. As far as I know, there are only five GSD kids in our state- and I have four of them.

So, it’s no wonder that I was very excited to hear from Stacy, another mom of GSD kids, in Utah the other day. Apparently Dr. Weinstein will be attending a conference in Salt Lake this fall, and she and Stephanie, mom of GSD type III kids, will be planning a mini Glycogen Storage Disease get-together and dinner while he’s in town. It’s still in the very early planning stages, but the dates will most likely be in the latter part of October in the Salt Lake City area. If anyone else would like to attend please e-mail me! We’re happy to meet all ages, all types.