The School Presentation
Posted on 25. Aug, 2007 by Jillian in Glycogen Storage Disease, Medical Service Dogs
We just gave a presentation: Understanding GSD to the school about GSD. It was wonderful. The principal, both of our son’s teachers, aides, the school nurse, a councilor, you name them, and they were there. It took a little longer to present than I thought it would, but we made a PowerPoint, and it went pretty smoothly. Everyone asked questions and for once I had all the answers. (A rare, but very pleasant feeling). It was amazing how seriously they took me and the disease now. By far the best meeting we have ever had at that school, and I think they will continue to be this mutually beneficial. His teachers and aide are wonderful!
Here is a link to the Power Point Presentation: Understanding GSD. Feel free to use or send us modifications and suggestions. Remember that all kids are a bit different so you might need to alter the information for your particular case. As a safety disclaimer we’ll throw in here that this is not from a medical source and not to be taken as medical advice, so don’t take it as such. Consult your physician (or Dr. Weinstein) for that. I would also like some comments as to how to improve it. Hint hint.



Jenny
25. Aug, 2007
Jillian,
I couldn’t see your school presentation. Could you send it to me @ hobbsfamily@knology.net?
Thanks!
Jenny
Mom to Michael, 5 and Meredith, 2 both GSD
Jillian
27. Aug, 2007
Sorry about that, I’ll have to talk to my webdeveloper (aka “honey”) about that one, but he’s been a bit busy. Let me know if you got the e-mail okay. If anyone else wants a copy please let me know.
Erica
31. Aug, 2007
Can you send it to me as well? I’d love to read it as we are in the process of having my son diagnosed.
Thanks!
Erica
Brad
06. Sep, 2007
I have two nephews with GSD and am going to do a presentation in my class. I would love to see what you did with your presentation. Could you send me the link as well?
Thanks!