http://www.starchwars.com/2007/10/amazing-gsd-conference/ Glycogen Storage Disease Wed, 20 Jul 2011 15:08:47 +0000 hourly 1 http://wordpress.org/?v=3.2.1 http://www.starchwars.com/2007/10/amazing-gsd-conference/comment-page-1/#comment-313 Stacy Sorenson Thu, 15 Nov 2007 20:49:08 +0000 http://starchwars.com/control/lib/blog/2007/10/29/amazing-gsd-conference/#comment-313 Jillian, It was so good to finally meet you. I wish we could have had many more hours to just sit and visit. I am amazed by how organized you are. Of course, I don't know how you could be anything but organized with all the cornstarch and medical equipment you have to keep track of. I had to giggle while I read about your preparations for the trip. I thought I had it rough trying to pack for just two. You are an inspiration for all of us. I am sure you are blessed with strength and patience. Thank you for starting this website. I enjoy reading about your life with gsd. You have a gift for writing in a way that is interesting and fun. I look forward to keeping in touch with you. Jillian,
It was so good to finally meet you. I wish we could have had many more hours to just sit and visit. I am amazed by how organized you are. Of course, I don’t know how you could be anything but organized with all the cornstarch and medical equipment you have to keep track of. I had to giggle while I read about your preparations for the trip. I thought I had it rough trying to pack for just two. You are an inspiration for all of us. I am sure you are blessed with strength and patience. Thank you for starting this website. I enjoy reading about your life with gsd. You have a gift for writing in a way that is interesting and fun. I look forward to keeping in touch with you.

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