Comments on: Quality of Life with GSD 1A http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/ Glycogen Storage Disease Wed, 20 Jul 2011 15:08:47 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Bonita http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-7847 Bonita Sun, 17 Apr 2011 17:15:41 +0000 http://starchwars.com/blog/?p=63#comment-7847 My grandson Anthony has GSD1A.He started T-ball last week.I worry about his sugar droping while playing.He sometime hides how he feeling. It seem like his cheeks and arms get red when it's time for his CS. My grandson Anthony has GSD1A.He started T-ball last week.I worry about his sugar droping while playing.He sometime hides how he feeling. It seem like his cheeks and arms get red when it’s time for his CS.

]]> By: Kayla http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-7611 Kayla Fri, 04 Feb 2011 07:26:57 +0000 http://starchwars.com/blog/?p=63#comment-7611 I have GSD 1A. I'm 18 and I received a transplant 2 years ago and today, I'm healthier than ever! I have GSD 1A. I’m 18 and I received a transplant 2 years ago and today, I’m healthier than ever!

]]> By: Tabitha http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-7367 Tabitha Mon, 06 Dec 2010 04:33:07 +0000 http://starchwars.com/blog/?p=63#comment-7367 Hi i am Tabitha i'm 13 years old and live in Illinois i am hoping that i could find someone to share stories about glycogen storage 1 a . It has been a long and interestring road so far. I would be happy to share information about this disorder from my experiences. My mom would be extatic to talk to other parents with childern of the same condition. Hi i am Tabitha i’m 13 years old and live in Illinois i am hoping that i could find someone to share stories about glycogen storage 1 a . It has been a long and interestring road so far. I would be happy to share information about this disorder from my experiences. My mom would be extatic to talk to other parents with childern of the same condition.

]]> By: Melissa http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-7323 Melissa Sat, 20 Nov 2010 17:44:20 +0000 http://starchwars.com/blog/?p=63#comment-7323 As I read your story I started to cry because we are a family a 1 year old with GSD I know how hard it is. To know that someone out there is feeling the same way and going through something similiar as myself makes me feel better. We have only found out a month ago and I was trying to find some more infor on it and I found you. I am glad that I did.. Thank you for taking the time to tell your story. Melissa As I read your story I started to cry because we are a family a 1 year old with GSD I know how hard it is. To know that someone out there is feeling the same way and going through something similiar as myself makes me feel better. We have only found out a month ago and I was trying to find some more infor on it and I found you. I am glad that I did.. Thank you for taking the time to tell your story.
Melissa

]]> By: jasmine http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-4501 jasmine Mon, 10 Aug 2009 13:11:19 +0000 http://starchwars.com/blog/?p=63#comment-4501 hi i have a wonderful 11 year old with gsd1a. happy to find you. jamine australia hi i have a wonderful 11 year old with gsd1a. happy to find you. jamine australia

]]> By: BMW http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-3080 BMW Tue, 09 Jun 2009 04:57:22 +0000 http://starchwars.com/blog/?p=63#comment-3080 Sheila, We're happy that you found our blog. We would love to have you a part of the online GSD community at http://gsdlife.ning.com -Ben and Jill Sheila,
We’re happy that you found our blog. We would love to have you a part of the online GSD community at http://gsdlife.ning.com

-Ben and Jill

]]> By: Sheila http://www.starchwars.com/2007/12/quality-of-life-with-gsd-1a/comment-page-1/#comment-3075 Sheila Mon, 08 Jun 2009 20:25:12 +0000 http://starchwars.com/blog/?p=63#comment-3075 Wow, what a story! We have an 11 year old daughter with GSD 1a, what at road it has been. She was diagnosed when she was 2. I have never met or read anyone elses experience with this disease, so was surprised to read yours! Thanks for taking the time! Wow, what a story! We have an 11 year old daughter with GSD 1a, what at road it has been. She was diagnosed when she was 2. I have never met or read anyone elses experience with this disease, so was surprised to read yours! Thanks for taking the time!

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