Comments on: The End http://www.starchwars.com/2009/07/the-end/ Glycogen Storage Disease Wed, 20 Jul 2011 15:08:47 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Erika Daniel http://www.starchwars.com/2009/07/the-end/comment-page-1/#comment-5783 Erika Daniel Wed, 16 Dec 2009 22:12:42 +0000 http://starchwars.com/2009/07/14/the-end/#comment-5783 HAHAHA.....I remember Dallin screaming about the toy! Hope everything is going well. Can't wait to see the boys when you guys come back! HAHAHA…..I remember Dallin screaming about the toy! Hope everything is going well. Can’t wait to see the boys when you guys come back!

]]> By: Glenna Paguio http://www.starchwars.com/2009/07/the-end/comment-page-1/#comment-4161 Glenna Paguio Fri, 17 Jul 2009 22:49:12 +0000 http://starchwars.com/2009/07/14/the-end/#comment-4161 Hi Jillian aka Supermom! It's Glenna from GCRC at Shands. I just got another job! Guess what? I'm in Dr. Weinstein's team now. I will be helping him by taking and returning phone calls and emails. I will be doing this in the evenings after my day's work at GCRC. Glad you made it to the beach and the I'm sure the boys had a blast! Hope the new schedule for all the boy's cornstarch is working well for the whole family. Regards and stay as energetic as you are! Hi Jillian aka Supermom! It’s Glenna from GCRC at Shands. I just got another job! Guess what? I’m in Dr. Weinstein’s team now. I will be helping him by taking and returning phone calls and emails. I will be doing this in the evenings after my day’s work at GCRC.
Glad you made it to the beach and the I’m sure the boys had a blast! Hope the new schedule for all the boy’s cornstarch is working well for the whole family. Regards and stay as energetic as you are!

]]> By: Jillian http://www.starchwars.com/2009/07/the-end/comment-page-1/#comment-4138 Jillian Thu, 16 Jul 2009 19:20:11 +0000 http://starchwars.com/2009/07/14/the-end/#comment-4138 Hi Jacqui, thanks for the comment. I always love talking to older people with GSD because I have no idea what GSD feels like, and my boys are still a little too young to tell me. :) Are you a member of http://gsdlife.org ? Hi Jacqui, thanks for the comment. I always love talking to older people with GSD because I have no idea what GSD feels like, and my boys are still a little too young to tell me. :) Are you a member of http://gsdlife.org ?

]]> By: Jacqui http://www.starchwars.com/2009/07/the-end/comment-page-1/#comment-4137 Jacqui Thu, 16 Jul 2009 17:58:13 +0000 http://starchwars.com/2009/07/14/the-end/#comment-4137 Hi jilian! My name is Jacqui, and I also have Glycogen Storage Disease. I have von Gierke 1A. That's an interesting story about you're trip to Florida. Sounds like you had a nice time seeing the beach, but you also have to deal with the extras in traveling because of Glycogen Storage Disease. My family would be in your position when traveling - they know exactly what it is like to look after someone with GSD. I think that your vacation story can relate to many other families that deal with GSD regardless if they have just one family member with the disease. Good luck to you and your family, and I hope that things will continue to improve as time goes on. Hi jilian! My name is Jacqui, and I also have Glycogen Storage Disease. I have von Gierke 1A. That’s an interesting story about you’re trip to Florida. Sounds like you had a nice time seeing the beach, but you also have to deal with the extras in traveling because of Glycogen Storage Disease. My family would be in your position when traveling – they know exactly what it is like to look after someone with GSD. I think that your vacation story can relate to many other families that deal with GSD regardless if they have just one family member with the disease. Good luck to you and your family, and I hope that things will continue to improve as time goes on.

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