The Wedding

Posted on 20. Jan, 2010 by Jillian in Glycogen Storage Disease

Saturday morning we kept pretty low key. The kids- and their parents- had a chance to play and relax a little bit from the crazy schedule.

Saturday afternoon: THE WEDDING

Oh so very fun, but a little crazy. We were fortunate enough that they post-poned the wedding a little while so we could do cornstarch right before-hand instead of having to leave in the middle, or starch early and throw off our schedule.

Even though they had all gotten their bolus feeds on time, about 30 minutes later, in the middle of the ceremony, Jonny fell into a deep sweaty sleep (a tell tale sign of hypoglycemia). Naturally, I didn’t think to bring a glucometer with us when we walked up the isle, so Ben had to sneak around all of the guests, and walk back inside to get it out of our med bag. And… Jonny’s blood sugars were just fine, he was simply tired. The ceremony was great, and my brother had rented a boat to take the guests (mainly the kids) around the bay. The boys were itching to go, and we had their next scheduled feeding looming in the next 45 minutes, but we still needed to do photos. My dad took his job of being in charge of the boat very seriously and disappeared to the dock shortly after the ceremony ended. Between waiting for him, trying to keep the boys entertained and not jumping into the bay, worrying about how much time we had until they needed food again, we didn’t get very many photos of the family. Sad. The boat ride was very fun though, and the boys LOVED it, and we were still able to get them dinner pretty much on time.

What we learned:

Keep a glucometer (and ways to treat low b/gs) on hand at all times- even during wedding ceremonies.

Mark is a great dancer.

Ethan can make a friend wherever he goes.

Jonny doesn’t know not to take fruit from strangers.

Dallin was a most popular dancing partner- even in his cast.

Sunday: We calmed things down a bit. All we did was visit the tidepools, where my brother and his new wife showed the boys some amazing new creatures- that spit.

Tags: family, travel