Report Cards

Posted on 26. Jul, 2011 by Jillian in Glycogen Storage Disease

Now, the moment we’ve all been waiting for….

Dallin:

Cholesterol (should be less than 170)                                    2011: 144
Triglycerides (should be less than 200)                                2011: 119

LDL (bad cholesterol should be less than 100-110)            2011: 76

HDL (good Cholesterol should be above 45)                        2011: 42
Uric Acid (not sure of normal levels)                                     2011: 4.6

AST/ALT (Measures liver damage- “normal” between 5-60)

AST (should be between 5-60)                                                 2011: 53

ALT  (should be between 5-60)                                                2011: 23

Liver:                                                                                 2011: 2.9cm below costal margin

Jonny:

Cholesterol (should be less than 170)                                    2011: 128
Triglycerides (should be less than 200)                                2011: 81

LDL (bad cholesterol should be less than 100-110)            2011: 52

HDL (good Cholesterol should be above 45)                        2011: 53
Uric Acid (not sure of normal levels)                                     2011: 4.6

AST/ALT (Measures liver damage- “normal” between 5-60)

AST (should be between 5-60)                                                 2011: 54

ALT  (should be between 5-60)                                                2011: 20

Liver:                                                                                 2011: 3.4cm below costal margin

Ethan:

Cholesterol (should be less than 170)                                    2011: 107
Triglycerides (should be less than 200)                                2011: 127

LDL (bad cholesterol should be less than 100-110)            2011: 36

HDL (good Cholesterol should be above 45)                        2011: 44
Uric Acid (not sure of normal levels)                                     2011: 5.4

AST/ALT (Measures liver damage- “normal” between 5-60)

AST (should be between 5-60)                                                 2011: 72

ALT  (should be between 5-60)                                                2011: 24

Liver:                                                                                 2011: 2.9cm below costal margin

Mark:

Cholesterol (should be less than 170)                                    2011: 117
Triglycerides (should be less than 200)                                2011: 112

LDL (bad cholesterol should be less than 100-110)            2011: 48

HDL (good Cholesterol should be above 45)                        2011: 44
Uric Acid (not sure of normal levels)                                     2011: 4.2

AST/ALT (Measures liver damage- “normal” between 5-60)

AST (should be between 5-60)                                                 2011: 78

ALT  (should be between 5-60)                                                2011: 28

Liver:                                                                                 2011: 3.1cm below costal margin

All of them had slightly high Vitamin D and Iron levels, so we’re reducing their supplements.

There is a bit of a hiccup though. These tests are the results of the blood drawn in Idaho before seeing Dr. Weinstein. So, they might be a little skewed. I’m trying to remember exactly what Dr. W. said, but it was something to the effect of different hospitals use slightly different tests, so the results at one hospital are not necessarily the EXACT results that you would get at a different hospital. The “normal” ranges are listed differently in each of the hospital report. I couldn’t find my copy with Idaho’s “normal ranges”, so I just copied the normals I had for Shands. It made perfect sense when he explained it, but I’m having trouble remembering it correctly. If someone else knows exactly what he’s talking about, please clear it up for us.  Anyway, this year’s results will look slightly higher than they probably would have if taken at Shands. Plus, you have to remember they were just getting sick when the blood was drawn for these results, so that puts them a little out of whack too.

But, since they’re all still in the “normal” range, I’m not allowed to freak out.  Abdominal ultrasounds for Mark and Ethan were done in Idaho right before blood draws, and came back normal.