Archive by Author

Recipes

Posted on 21. Mar, 2007 by .

1

One of the hardest parts of GSD is finding recipes to match the diet- especially for special occasions such as birthdays or holidays. So, we’ve started a “recipe” page. PLEASE feel free to e-mail me ANY sucrose, fructose, or lactose-free recipes you come up with. I would particularly like to post a frosting recipe. Wink [...]

Continue Reading

A Family Disease

Posted on 18. Mar, 2007 by .

1

When a child has a rare, life-threatening disease like Glycogen Storage Disease, it doesn’t just affect the child or even his immediate family. It touches and alters the lives of extended family as well. For instance, last week when our GSD boy #3 was in the hospital, my husband needed to stay with him 24 [...]

Continue Reading

Update

Posted on 13. Mar, 2007 by .

1

Well, our 14 month old is still in the hospital. He has the rotavirus, and we are having difficulty weaning him off the I.V. Everytime we try to gradually drop the I.V. rate, his blood sugar drops below 70 and they have to raise the I.V. rate again. My husband has stayed with him the [...]

Continue Reading

You know you have GSD if…. The E.R. nurse knows you by name- or at least by disease

Posted on 11. Mar, 2007 by .

2

Yesterday our 14 month old got sick. His “normal” friends had a bad fever, and horrible aches and pains. That’s how it started out, but after a few hours we believe his lactate levels rose too high and he began throwing up. We switched gears to giving him a slow gravity feed of one ounce [...]

Continue Reading

« Newer Entries