Archive for 'GSD Resources'

A Family Disease

Posted on 18. Mar, 2007 by .

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When a child has a rare, life-threatening disease like Glycogen Storage Disease, it doesn’t just affect the child or even his immediate family. It touches and alters the lives of extended family as well. For instance, last week when our GSD boy #3 was in the hospital, my husband needed to stay with him 24 [...]

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Am I a Carrier of GSD?

Posted on 18. Mar, 2007 by .

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Since our family has been diagnosed and especially since we’ve batted a thousand on all four of our boys having GSD 1A many of our extended family members have expressed interest in finding out if they too are carriers of the genetic disorder. The chances, of course, are rare that even if a person happens [...]

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You know you have GSD if…. The E.R. nurse knows you by name- or at least by disease

Posted on 11. Mar, 2007 by .

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Yesterday our 14 month old got sick. His “normal” friends had a bad fever, and horrible aches and pains. That’s how it started out, but after a few hours we believe his lactate levels rose too high and he began throwing up. We switched gears to giving him a slow gravity feed of one ounce [...]

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