Archive for 'research'

Dogs and Hypoglycemia

Posted on 12. Mar, 2008 by .

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More and more it seems evident that dogs can be trained and used to help detect hypoglycemia. This article was sent to us by our friends with Genesis Service Dogs who are helping us train Luke. The article is from Diabetes Forecast http://www.diabetes.org/uedocuments/df-dog-feature-0308.pdf

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Amazing GSD Conference

Posted on 29. Oct, 2007 by .

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We just got back from our trip to Utah’s first, and hopefully annual, GSD conference. It was incredible! We came back with pictures, memories, videos and more. We feel exhausted and energized at the same time. There is so much to blog about that we’ll have to divide it into sections. So, this post will [...]

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GSD get-together in Utah

Posted on 21. Oct, 2007 by .

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This Friday we are driving to Utah to meet others (and their families) with GSD for the first time. The Make a Wish Foundation in Murray, Utah is graciously allowing us to use a conference room to meet in. There will be several families with various types of GSD as well as our favorite physician [...]

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Luke Vs. Mr. Roboto- a dog update

Posted on 05. Oct, 2007 by .

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Our son Ethan just had his fourth birthday, and received a thoughtful and creative gift from his “girlfriend” Karlee. She understands that we are training a dog that will (hopefully) be able to help the boys when they get sick. So, she built him an awesome robot out of tin cans- in case Luke doesn’t [...]

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New GSD Networking Website

Posted on 08. Sep, 2007 by .

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We’ve been wanting to start a networking website. We finally got something basic going at http://www.gsdlife.org This may turn out to be a great place to share experiences with all types of Glycogen Storage Disease in a more private environment. There’s a forum for discussions, a place for individual blogs (a journal of entries like [...]

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A New Hope

Posted on 02. Sep, 2007 by .

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We’ve had Luke in the house for one week now and the experience has had its ups and downs. For one thing since Luke is being raised as a service dog there is much more monitoring and discipline than there otherwise would be. With the current load of 4 small boys with Glycogen Storage Disease [...]

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Malteagles, Malteagles, Malteagles

Posted on 19. Jul, 2007 by .

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Malteagle pictures Some are so cute, some are so ugly they’re cute, but either way, we love malteagles. These photos were taken of the puppies bred specifically for helping to find a cure for Glycogen Storage Disease. Dot (mom) was a carrier, given to Dr. Weinstein by Duke University. Last December she had darling little [...]

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The School is “Fixed”

Posted on 18. Jun, 2007 by .

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Anyone who has read previous posts on Starchwars may remember the difficulty we have been having trying to get our oldest son appropriate services at his public school. For him, this would include an aide assigned specifically to him and trained to recognize and treat hypoglycemia as well as administer his cornstarch “medicine”. The school [...]

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Sanctuary in Florida!

Posted on 03. Jun, 2007 by .

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Though the trip to Florida is challenging with four children under the age of 6, we come home recharged and more prepared to continue the non-stop battle of Glycogen Storage Disease. As my wife has mentioned in the previous post, we have learned and gained experience that helps us travel the country with our little [...]

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